My platelets have been holding steady in the normal range. Normal counts are 150,000-400,000. People with chronic ITP can have counts between 50,000-80,000 and doctors are ok to keep a close eye on it supplementing with steroids and IVIG as needed. I’ve been getting blood tests every week and the latest one has my counts at 238,000!! Super exciting and now I only need to get blood tests every 2 weeks and if they continue to be normal the blood tests will become less frequent unless I see symptoms.
I’ve been doing the same things since mid April including no alcohol, no aspartame (artificial sweetener), trying to keep stress low and I’ve now switched to the taking 2 capsules of the papaya leaf supplements a day instead of the drinking the tea. The pills are stronger than the tea and much more convenient. I did have a big jump from 172,000 to 238,000 maybe because the pills are stronger. I can’t really be sure anything that I’m doing is really helping considering the I in ITP is idiopathic (no known cause) but I’d like to think it is – no reason to believe it’s not – right?
I’ve really been feeling great and can’t thank everyone enough who has called, texted and kept up with my progress it’s really meant more than I can say. I’m praying that I can stay on this path and really get back to normal life soon. This weekend I may try a glass of wine and see how that effects anything since I have a blood test coming up next Thursday. Keep you posted!!
I stayed in the hospital for 3 days until my platelets were above 20,000 and I could be released. It was a long 3 days – I don’t want to complain because there are people who are hospitalized for a long time- but it was a long 3 days. There really wasn’t much they were doing for me besides keeping me on steroids since this is the first way to treat ITP to get the platelet count to go up.
When I was ready to get released I asked both my hematologist and another doctor that was checking on me – ” What should I do – What should I not do?” Both said there wasn’t anything to do or not to do since there is not cause for this – “ideopathic”. All this time I’ve been trying very hard to not google or research what was going on because we all know how that never ends well. Googling any symptoms always ends up the worst way – cancer- death. So that’s what I did – went about everyday life just as before. Went back to work, had my nightly glass (or 2) of wine and figured my platelets would keep going up. The whole thing with this is – I never felt bad- I was working out, living life and never felt sick. I was released on Friday and worked all weekend with my next blood test scheduled for Tuesday. Tuesday morning I went to get my blood tested and then to work. A few hours later in the afternoon my phone started blowing up and I could see it was the hospital and figured this probably wasn’t good. I was surprised to hear my platelet level plummeted to below 2,000. They wanted to admit me into the hospital again but I convinced them I would go straight home, wrap myself in bubble wrap and not do anything. They scheduled me to get what is called IVIG which is an infusion of globulins the next day.
The next day I went to the hospital to get an infusion took about 4 hours and then the day after the same thing. These globulins are supposed to bond to the ones you have and build up your system. It worked my levels went up so that was good news. So, then again, I went about life.